Disability Related Links

Index

• Disability Resources
• Information About Specific Conditions
• Support for Community Living
• Employment/Transition to Work
• General Information for Families
• Special Education
• Assistive Technology
• Health Promotion and Disability Prevention
• Accrediting Organizations
• Organizational and Grant Resources
• National Disability Organizations

TheArcLink.org - TheArcLink’s goal is to provide resources that empower individuals with disabilities and their families to make sound choices about services that support their full participation in the community.

Disability Resources

The Arc provides the following links to organizations or other resources that may contain information useful to your search.  The Arc is not responsible for the content provided through these links.

• Información en Español sobre Discapacidades Específicas - Una página de NICHCY de recursos en Internet.
• C L A S Culturally & Linguistically Appropriate Services - Early Chilhood Research Institute - Collection of Resources.
• Directory of State Developmental Disabilities Agencies -  Provided by the National Association of State Directors of Developmental Disabilities Services (NASDDS)
• disABILITY Resources on the Internet- Various links to on-line resources.
• Disabilityinfo.gov - This online resource guides users to disability related resources in an easy-to-use format.
• Internet Resources for Special Children (IRSC) - Web site with information relating to the needs of special children on a global basis.
• National Clearinghouse of Rehabilitation Training Materials
• National Rehabilitation Information Center - Funded by NIDRR (Nat. Institute on Disability Rehabilitation and Research) as a collection and information resource for NIDRR projects.
• President's Committee for People with Intellectual Disabilities (PCPID)
• Quality Mall - Person centered services supporting people with developmental disabilities - showcase of promising practices and innovations.
• Medicaid Reference Desk - The Desk.info is a state by state guide about medicaid for people with intellectual disabilities.
• State of the States in Developmental Disabilities - A comprehenisive state comparison of spending and programmatic trends published by the Coleman Institute at The University of Colorado

Information About Specific Conditions

• Manitas por Autismo- Somos una organización sin fines de lucro que trabaja día a día para brindar información sobre el autismo.
• The Center for Autism and Related Disorder- The world's largest and most experienced organizations effectively treating children with autism and related disorders.
• National Autism Association- Family First was launched to provide couples within the autism community a way to access counseling on a 24/7 basis.
• Asperger's Syndrome
• Chromosome Deletion Outreach, Inc. - Organization providing information and support to families affected by any type or rare chromosome disorder
• cri du chat syndrome
• National Down Syndrome Congress - Home page for a national advocacy organization on Down Syndrome.
• The National Down Syndrome Society
• Down Syndrome on the Internet - links to down syndrome web sites.
• National Fragile X Foundation - A site with to information and resources about fragile X syndrome.
• National Organization for Rare Disorders - An organization devoted providing information on hundreds of rare disorders
• FRAXA Research Foundation - national nonprofit organization providing information on Fragile X syndrome.
• The Hydrocephalus Association - Includes Hydrocephalus fact sheet.
• The XXYY Project - Information on kids with special needs XXYY or Klinefelter Syndrome.
• International Rett Syndrome Association - Information on Rett Syndrome
• Prader-Willi Syndrome Association (USA) - A national organization for families, professionals and service providers dedicated to improving the lives of people with Prader-Willi syndrome.
• The Comprehensive Williams Syndrome Home Page
• World Association of Persons with Disabilities - A website for persons with disabilities.
• National Center on Shaken Baby Syndrome- A website that offers information, ideas and answers for parents and caregivers who are struggling to cope with a crying baby.
   

Support for Community Living

• The Center on Human Policy - A Syracuse University based policy, research and advocacy organization. Includes information about ordering Human Policy Press publications.
• The Institute for Community Inclusion - Advocates for the right of all people with disabilities to be full participants in their communities.
• The Institute on Community Integration - A University of Minnesota affiliated program dedicated to improving community services for people with developmental disabilities and their families.
• The Center for Housing and New Community Economics - A Technical Assistance Center at the University of New Hampshire Institute on Disability.
• Rehabilitation Research and Training Center on Aging with Developmental Disabilities
• The State of the States in Developmental Disabilities - Examines public spending for mental retardation/developmental disabilities services in the United States.

Employment/Transition to Work

• Office of Disability Employment Policy - The web site includes PCEPD publications, press releases, general information on the Committee, and contact information for state liaison organizations.
• Cornell University Employment & Disability Institute - Resources and information on employment of people with disabilities.
• Employment Support Institute - Helping people make better decisions about employment options and policies.
• JAN - Job Accommodation Network, accommodations for workers with disabilities.
• Life Skills for Vocational Success - A resource of trainers to improve life skills
• The Transition Research Institute at the University of Illinois - Headquarters for the National Transition Alliance for Youth with Disabilities, promotes the inclusion of youth with disabilities in the national school-to-work efforts.
• Virginia Commonwealth University - Rehabilitation Research and Training Center on Workplace Support.

General Information for Families

• Beach Center on Families and Disability - Research on families, disability and policy.
• Blue Tower Training Center - Abuse prevention education materials.
• Do2Learn - Free Activities and Games - A website for those with special learning needs.
• Family Village - A Global Community of Disability-Related Resources.
• Parent Training & Information Centers & Community Parent Resource Centers - Dedicated to empowering parents.
• Sibling Support Project - Seeks to increase the peer support and information opportunities for brothers and sisters of people with special needs and to increase parents' and providers' understanding of sibling issues.
• Special Child Magazine - Free online publication for parents and caregivers of children with special needs.
• Special Olympics - Providing year-round sports training and athletic competition for people with intellectual disabilities.
• SSA Home Page - Information and publications on entitlement programs for people with disabilities.

Special Education

• Council for Exceptional Children - professional organization dedicated to improving education outcomes for students with disabilities.
• Council of Parent Attorneys and Advocates - Organization established to improve the quality and quantity of legal assistance for parents of children with disabilities.
• National Early Childhood Technical Assistance System (NEC*TAS) - A federally funded technical support program for early childhood education at the Frank Porter Graham Center at the University of North Carolina.
• The National Early Childhood Transition Research and Training Center (NECTC) - The Center's mission is to examine factors that promote successful transitions between infant/toddler programs, preschool programs, and public school programs for young children with disabilities and their families.
• National Center on Educational Outcomes (NCEO) - Provides national leadership in the identification of outcomes and indicators to monitor education results for all students, including students with disabilities.
• National Dissemination Center for Children with Disabilities - Resources provided by The National Information Center for Children and Youth with Disabilities (NICHCY)
• Special Education Resources on the Internet - (SERI) is a collection of Internet accessible information resources of interest to those involved in the fields related to Special Education.
• Washington Learning Systems - A small company working to create big changes in the lives of young children. Our evidence based programs promote early literacy, language, cognitive, and social development.  Available in Spanish and English.

Assistive Technology

• AbilityHub - Assistive Technology for computers and disability.
• Alliance for Technology Access

Health Promotion and Disability Prevention

• American Academy of Pediatrics - An organization of 50,000 pediatricians dedicated to the health, safety and well-being of infants, children and young adults.
• Families USA - National nonprofit group which advocates for health and long-term care services.
• Fetal Alcohol Spetrum Disorders - Part of the Centers for Disease Control and Prevention's National Center on Birth Defects and Developmental Disabilities
• Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence - a Federal initiative devoted to preventing and treating FASD. This Web site provides information and resources about FASD.
• Healthfinder - A gateway consumer health information web site from the United States Government.
• Newborn Screening Information
• World Health Organization's Helmet Initiative - Promoting use of bicycle and motorcycle helmets worldwide.

Accrediting Organizations

• The Council on Quality and Leadership- A resource for individuals, families, advocates, provider organizations, professionals and the public sector.
• CARF - Commission on Accreditation of Rehabilitation Facilities

National Organizations

• AAPD - American Association of People with Disabilities
• AAIDD - The American Association on Intellectual & Developmental Disabilities - The national organization for professionals and others interested in the field of intellectual disabilities.
• AUCD - Association of University Centers on Disability
• ANCOR - American Network of Community Options and Resources
• The Bazelon Center for Mental Health Law, a national organization which focuses on legal advocacy for the civil rights and human dignity of people with mental illness.
• Best Buddies -Best Buddies is a non-profit organization dedicated to enhancing the lives of people with intellectual disabilities by providing opportunities for one-to-one friendships and integrated employment.
• The Bubel/Aiken Foundation- provides services and financial assistance to facilitate fully the integration of children with disabilities into the life environment of those without and works to create awareness about the diversity of individuals with disabilities and the possibilities inclusion can bring.
• Consortium for Citizens with Disabilities - A coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
• Epilepsy Foundation of America - National organization that works for people affected by seizures through research, education, advocacy and service.
• Genetic Alliance - A national coalition of consumers, professionals and genetic support groups for concerns on genetic conditions
• Kiwanis International - An international service organization with numerous projects focusing on individuals with mental retardation and the worldwide prevention of iodine deficiency disorders, including mental retardation. See also Kiwanis Aktion Clubs.
• March of Dimes - Provides information, resources, referrals and data intended to assist the public in having healthy pregnancies and healthy births. The web site also provides information for health care professionals and offers opportunities for volunteering in March of Dimes fundraising events.
• National Association of Councils on Developmental Disability (NACDD)
• National Disability Rights Network  - An association which represents federally mandated programs that protect the rights of persons with disabilities.
• National Organization on Disability - A national advocacy organization which promotes the full participation and contribution of America's 54 million people with disabilities, through Harris surveys and programs addressing community accessibility, emergency preparedness, employment, religious participation, and other aspects of life.
  
• National Organization for Rare Disorders - Technical assistance and information dissemination on rare disorders.
• Self Advocates Becoming Empowered - The national organization of people with intellectual and developmental disabilities
• United Cerebral Palsy
• TASH - An international association of people with disabilities, their family members, other advocates and professionals

Organizational and Grant Resources

• The Foundation Center - Tips for finding funding sources and writing proposals.

WEB LINKS: The Arc provides links to other web sites for convenience and reference only.  This is not intended as an endorsement by the The Arc.  The Arc does not warrantee that web sites linked will be free of infection by viruses. Individuals should make sure they maintain proper computer security and protection levels.