Join The Arc for a special webinar featuring a team from APHA’s Disability Section Executive Council. Each speaker’s presentation will focus on a different topic relating to improving the quality of life for individuals living with an intellectual disability.
Developing and evaluating family-level outcome measures for use in health and disability research
Presenter: Stephen Firsing, PhD
Stephen is a faculty member in the College of Health Sciences at the University of Kentucky. His research interests include disability across the lifespan, chronic disease management, and family-level outcomes. He holds a Doctorate in Public Health from the University of Alabama at Birmingham.
Stephen’s presentation will focus on the development of a new instrument to assess Family Quality of Life (FQOL) among caregivers of adults with traumatic brain injury using a mixed methods approach.
Resource Capacity and Health Interventions: Implementing and Evaluating the WBH Curriculum in Montana
Presenter: Holly Horan, MS
Holly is currently a doctoral student in Applied Medical Anthropology at Oregon State University. She received her masters in Medical Anthropology at the University of Montana, Missoula where she was a research assistant at the Montana Disability and Health Program from 2009 to 2012. Holly’s research foci are in maternal and infant health, reproductive health and developmental origins of health and disease.
Her presentation will focus on the implementation and evaluation of the North Carolina Office on Disability and Health’s (NCODH) Women Be Healthy (WBH) curriculum in the rural state of Montana. This program was designed to encourage women with ID to become more active participants in their own health care, using three tactics: health education, anxiety reduction practices, and assertiveness and empowerment training.
End-of-life Support Provided by Agency Staff for Adults with Intellectual and Developmental Disabilities
Presenter: Theresa Moro, MS
Teresa is currently finishing her doctorate at the School of Social Service Administration at the University of Chicago. The purpose of her dissertation research is to explore the experiences of family members and agency staff with end-of-life care for adults with intellectual and developmental disabilities. Ms. Moro has co-authored several manuscripts and book chapters exploring different aspects of death and loss.
Her presentation will discuss family member and agency staff experiences and the care received by an adult with intellectual and developmental disability at the end of life. She will also discuss facilitators and barriers identified by family members and agency staff.
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