Research Legislative Agenda for the 112th Congress (2011-2012)

A variety of federal agencies are responsible for undertaking vital research activities to prevent and ameliorate disability and to improve the quality of life for children and adults with developmental disabilities.  Some of these research efforts directly target our constituents, while others are more broad based.

The 112th Congress should: 

  • Significantly expand federal funding of basic and applied research at the Centers for Disease Control and Prevention, the National Institutes of Health, the National Institute on Disability and Rehabilitation Research, and the Environmental Protection Agency designed to both improve the quality of life for our constituents and to prevent the causes and effects of intellectual and developmental disabilities, cerebral palsy, and related disabilities;
  • Support and expand the research efforts of the Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Centers to discover the causes of, as well as effective treatments and supports for, persons with developmental and related disabilities;
  • Provide funding for all relevant agencies to translate and disseminate to practitioners, families, and policymakers new knowledge about effective practices;
  • Assess the financial and social impact of the failure of government to address the unmet needs of our constituents;
  • Support training of existing and emerging scholars to conduct relevant research;
  • Promote the prompt publication and dissemination of appropriate findings, written in commonly understood language;
  • Support research that examines the effects of multiple chemical exposures on the developing nervous system and ensure that chemical exposure research and surveillance includes individuals with IDD;
  • Require the National Institute on Disability and Rehabilitation Research (NIDRR) to prioritize and fund field-initiated and other research in the areas of physical, intellectual, and developmental disabilities that represents a mixture of methodological approaches, including qualitative research, policy analysis, survey research, and experimental design;
  • Promote the implementation of accurate and independent research findings that assist people with developmental and other disabilities to lead quality lives in the community;
  • Support research on disability and aging;
  • Fully fund the National Children’s Study to continue research examining the effects of the environment on children’s health and development; and
  • Incorporate disability status in any health-related research.

Legislative Agenda Partners

We are national organizations that serve and advocate for people with intellectual, developmental, and other disabilities. We work together to shape, expand, and protect a strong federal role that provides vital benefits, services and supports and assures civil rights for our constituency.