The Arc’s Family Support Research and Training Center Webinar Archive

As a partner of the Family Support Research and Training Center (FSRTC) at the University of Illinois at Chicago (UIC), The Arc offers webinars to help you learn about current family support research and how you can use this research to support families. Webinars have been archived and made available online for viewing below.

The Sibling Leadership Network Presents: How to Start a State Sibling Chapter

The Sibling Leadership Network (SLN) is a national nonprofit dedicated to providing support and information to siblings of people with disabilities across the lifespan. Currently there are 22 state chapters of the SLN with the vision to have a chapter in every state in the country. Chapters are the grassroots of the organization and where personal contact with siblings happens. Each chapter has its own feel and flavor. If you are interested in starting a chapter in a state that does not currently have one, please join this webinar to learn the process for creating and developing a sibling chapter of the SLN.

As a project partner for the Family Support Research and Training Center (FSRTC), the SLN has developed A Guide for Sibling Chapters. This webinar will provide foundational information on how to start a sibling chapter in your state.

PowerPoint Slides                       Webinar Recording                                 Transcript

“Caring for Myself”: A health promotion program for family caregivers of persons with IDD

The majority of children and adults with intellectual and developmental disabilities (I/DD) live with their families. This is especially true for people with I/DD from Latino and other minority households. The primary caregivers in these households, who are usually mothers, face significant challenges with their own emotional and physical health. Furthermore, research suggests that lifelong caregiving exacerbates already existing health disparities that Latina women face. Effective practical interventions that promote healthy lifestyle behaviors and well-being among caregiving mothers are needed. 

In this webinar, Sandy Magaña, Miguel Morales, and Judith Rocha will present information about an evidenced-based intervention, “By Caring for Myself, I Can Care Better for My Family.” This intervention engages community health workers who are also family caregivers of persons with I/DD to deliver the curriculum. They will discuss cultural aspects and other components of the intervention, how to set up a similar project in your area, and how to adapt it to other cultural groups.

PowerPoint Slides Webinar Recording Transcript

Family Support Research: What You Told Us to Study and What we are Learning about Siblings – September 2015

Families supporting children and adults with a wide range of disabilities provide emotional support, help people around the house and in daily activities, coordinate services, and figure out logistical needs. However, family members often do not have the resources and support they need. In the initial Family Support Research and Training Center Webinar, we asked for your input on Family Support: Tell Us What We Need To Know (FS-Need to Know)

Professors Sandy Magaña and Brian Grossman will discuss the results of Family Support: Tell Us What We Need To Know (FS-Need to Know) and the research topics you and other stakeholders want the Family Support Research and Training Center to focus on.

Siblings play an important role in family support. Katie Arnold, Executive Director of the Sibling Leadership Network and Director of Community Education at the Institute on Disability and Human Development, will discuss the preliminary findings from the National Survey about Siblings of Individuals with Disabilities, their Support Needs, and their Families.

PowerPoint Slides Webinar Recording Transcript

 

State Family Support Coalitions: Bringing the Aging and Disability Community Together to Address Challenges in Supporting Families

Join us to learn about the family support coalitions organized by The Arc of Kentucky, The Arc of Tennessee, and The Arc of Philadelphia. Family members provide the majority of support to people with disabilities across the lifespan. To identify and address challenges in supporting families, these chapters convened organizations that advocate for and serve people with disabilities and seniors in their states. Each chapter hosted a full day meeting and is continuing to work with its coalition partners to address challenges in supporting families. The executive directors of the chapters will discuss the outcomes from the first full day meeting of each coalition and their plans to move the coalitions forward.

These coalitions were created through the Family Support Research and Training Center (FSRTC) at the University of Illinois at Chicago (UIC).

PowerPoint SlidesWebinar Recording Transcript

In communities around the country, families support children and adults with a wide range of disabilities as well as seniors. Families provide emotional support and comfort, help people around the house and in daily activities, coordinate services, and figure out logistical needs. However, family members often do not have the resources and support they need.

Family Support: Tell Us What We Need To Know (FS-Need to Know) is a project that asks people like you, those providing family support, to let researchers know what topics need further exploration. In this town hall, researchers Sandy Magaña and Brian Grossman will discuss how current research is helping families, people with disabilities, and seniors around the country. After this, you will have the opportunity to ask questions and share what issues you think researchers should focus on to improve the lives of families, people with disabilities, and seniors around the country.

PowerPoint Slides Webinar Recording Transcript