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Website Home June 16, 2011
FINDS press conference
FINDS Press Conference
Photo via Associated Press
New Data Reveals People with Intellectual and Developmental Disabilities Still in the Shadows

This week, The Arc released the results of its Families and Individual Needs for Disability Support (FINDS) survey showing that opportunities for people with intellectual and developmental disabilities (I/DD) to lead productive, quality lives have plateaued and not nearly enough progress has been made to create more opportunities. As a result, The Arc has outlined a broad call-to-action for people with I/DD and those who care about them. The Arc is calling for more grassroots activism, launching an effort to organize 1 million people to make their needs and concerns an issue in the 2012 elections. In addition to some specific legislative and awareness goals, we’re calling on everyone to join the movement, share a story, or, if you are an employer of someone with I/DD, tell us about your experience. Read the full article.

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Peter Berns Oswald D. Heck Developmental Center Achieve with us contest
The Arc's CEO Peter V. Berns Oswald D. Heck Developmental Center Achieve with us contest
The Arc's CEO Appointed to President’s Committee Media Shines Spotlight on Allegations of Abuse Win a Trip to Washington, D.C. for You or Someone You Know
President Obama appointed The Arc's CEO, Peter V. Berns, to the President’s Committee for People with Intellectual Disabilities. He joins an expert group providing advice to the President and the Secretary of Health and Human Services on a broad range of topics that impact people with I/DD. Read the full press release announcing his appointment. In recent months, the New York Times has published two stories on conditions at New York state-operated programs for people with intellectual and developmental disabilities. The most recent article detailed the Oswald D. Heck Developmental Center and the death of Jonathan Carey, a 13-year-old autistic boy who died from asphyxiation caused by a state employee charged with caring for him. Read more. Enter The Arc’s Achieve with us contest with a story of achievement by someone with intellectual and developmental disabilities now through July 15. The subject of the winning story wins a trip for two to Capitol Hill and The Arc’s national office to tell their story. We invite everyone with I/DD, their families, friends and caregivers to share stories of achievement on Facebook at www.facebook.com/thearcus.
The Arc Assumes Medicaid Reference Desk
On June 1, The Arc began operations of the Medicaid Reference Desk project, funded by the Administration on Developmental Disabilities. The project provides information to individuals with intellectual and developmental disabilities and their families with up to date and accessible information about Medicaid, including resources and links on how to use and connect to Medicaid-funded services. Nancy Ward will continue her role as the project's Training Coordinator, and the web site, thedesk.info, will be updated within the next few weeks.
Are You Coming to Denver? Register Now for The Arc’s National Convention
Join us in Denver, CO September 16-19 at The Arc’s National Convention. You won’t want to miss your biggest and best opportunity to connect with others in the intellectual and developmental disability community at this annual gathering of The Arc’s membership, chapter staff and volunteers, professionals and experts in the field and individuals with I/DD and their families. Get the full Convention Schedule and book now at the convention page of our website.
Send a Special Gift Today
Tribute gifts are a thoughtful way to celebrate a birthday, wedding, graduation or any special occasion. They also serve as a special expression of sympathy by honoring the memory of a loved one. Tributes can honor someone you admire, respect, or want to remember, such as a family member, friend, or special co-worker. Your gift is acknowledged with a card to the recipient or their family letting them know that a donation has been made in their honor. Your generosity allows us to continue our work for people with intellectual and developmental disabilities, so make a gift today.
What Do Adults with Disabilities Wish Parents Knew?
A book from editors Stan Klein, Ph.D. and John Kemp explores this question with a collection of essays from people who have lived the disability experience offering their perspective on what all parents of children with disabilities should know as they guide their children into adulthood. Reflections from a Different Journey is available online at www.disabilitybooks.com and a portion of sales benefits The Arc. If you order, please enter The Arc into the portion of the online order form requesting an organizational code at checkout.
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