Prevention Legislative Agenda for the 112th Congress (2011-2012)

The 112th Congress should endeavor to increase research into the prevention of disabilities and secondary disabilities by:

  • Protecting the Prevention and Public Health Fund created in the Affordable Care Act designed to increase the national investment in prevention and public health, improve health, and enhance the quality of health care.

  • Increasing funding for the National Center on Birth Defects and Developmental Disabilities (NCBDDD) at the Centers for Disease Control and Prevention (CDC), the National Institutes of Health (NIH), and the Environmental Protection Agency (EPA) and for other existing federal education and prevention initiatives, in areas including but not limited to:

--Autism spectrum disorders;

--Cerebral palsy;

--Developmental disabilities;

--Environmental hazards;

--Fetal alcohol spectrum disorders;

--Food additives and harmful drugs;

--Intellectual disabilities;

--Lead poisoning prevention through detection and abatement;

--Product safety;

--Sexual exploitation and abuse;

--Smoking; and

--Transportation safety.

  • Enacting legislation to reduce harmful chemical exposures that can result in intellectual and developmental disabilities;

  • Requiring public and private insurance payers to pay for evidence-based special diet foods that prevent disabilities such as special phenylalanine-free preparations to control Phenylketonuria (PKU);

  • Ensuring full implementation of the mandated Medicaid Early Periodic Screening, Diagnosis, and Treatment (EPSDT) program;

  • Protecting and expanding the existing disability-related warnings on alcohol products;

  • Supporting legislation that will provide nationwide tracking for the prevalence of developmental disabilities and associated environmental causes;

  • Increasing resources for the National Center on Birth Defects and Developmental Disabilities (NCBDDD) and other similar federal agencies to expand the State Disability and Health program in order to prevent the occurrence of secondary conditions for individuals with lifelong disabilities; 

Legislative Agenda Partners

We are national organizations that serve and advocate for people with intellectual, developmental, and other disabilities. We work together to shape, expand, and protect a strong federal role that provides vital benefits, services and supports and assures civil rights for our constituency.